NHS England has commissioned the National Diabetes Experience Survey (NDES) to understand the experience of people living with type 1 and type 2 diabetes. NHS England intend to use the insight gathered through the survey to make informed policy and practice decisions about how best to support patients at both national and ICS level.
For the survey data to be as representative as possible, a randomly selected sample from the National Diabetes Audit (NDA) will be required to be linked with the Personal Demographic Service (PDS) dataset. The NDA enables the identification of people living with diabetes whilst linkage to the PDS is required to obtain contact details to invite people to take part in the survey. There will be no changes to the NDA data collection process; only information currently collected for the audit would be used for the survey. This method of sampling is common practice across the delivery of other national patient experience surveys.
Around 105,000 people living with diabetes will be invited to take part in the survey via letter and text message reminders from March 2024. NHS England have commissioned Ipsos, an independent research organisation, to carry out the survey. Delivery of the survey will be managed by NHS England and Ipsos. Ipsos will also provide a freephone helpline to support participants with queries.
OPTING OUT
If you do not want to take part, email agem.diabetessurvey@nhs.net or call 0121 611 0020 before 17th January 2024. The phone line is open 8am to 6pm Monday to Friday. You will need to provide your full name, date of birth and postcode.
For more information go to: National Diabetes Survey
You will still need to contact us if you have a National Data Opt Out. The Department of Health and Social Care has confirmed that this survey is exempt. For more information: NHS Digital National Data Opt Out
The survey will be carried out by Ipsos UK on behalf of NHS England. An independent oversight group, including members of the public, has provided support for confidential patient information to be used to identify and invite people living with diabetes to take part in this survey